Battling a Rare Disorder and Challenging Doctors for 20 Years

Imagine being born with skin that seemed to belong to a five-year-old when you were just a baby. This was the reality for Tomm Tennent, surprising doctors and his own father alike. Their journey has been filled with challenges and intense emotions, and seeing Tomm today is nothing short of astonishing.

In 1993, in South East Australia, Tomm Tennent was born with an extraordinary condition. Ultrasounds hinted at something unusual, leading his parents to question whether to proceed with the pregnancy. Fortunately, Tomm’s father, Geoff Tennent, decided to continue. “We discussed it and decided what’s meant to be is meant to be, and we went through with it,” Geoff said.

No amount of testing could have prepared anyone for Tomm’s condition. Upon seeing him for the first time, Tomm’s parents were in shock. His mother, Debbie Tennent, couldn’t believe her eyes when she held him. “My heart came up to my throat, but it was lovely to pick him up and cuddle him,” she recalled. Doctors were equally baffled, unable to determine the cause or find a treatment. Their only hope was that he would grow into his skin over time.

After two and a half months in the hospital, researchers made a fascinating discovery: Tomm had a surplus of Hyaluronic acid, similar to Shar Pei puppies. This substance, which causes their distinctive wrinkles, decreases as the puppies grow. Doctors hoped the same would happen for Tomm. Dr. Andrew Ramsden predicted that Tomm’s condition would improve with age, and he was right.

Tomm faced significant challenges growing up, including teasing and exclusion from school due to his appearance. However, over time, his distinct features became less pronounced. Thirty years after his birth, Tomm continues to amaze doctors. Though details about his life are scarce, his Facebook profile reveals that he is happily married to Hannah in Frankston, Victoria, Australia. “Life’s simple. You make choices, and you don’t look back,” Tomm posted.

Welcoming a new baby is a joyous event, coupled with an innate desire to protect them. Cristina and Blaize, the main characters in our next story, experienced this joy with their newborn daughter, only to discover she had a rare condition that initially baffled doctors.

Leave a Reply

Your email address will not be published. Required fields are marked *